For those following this, the next chapter analysis is up.
It’s kind of like being psychoanalysed via one of my books; albeit the book that I probably feel most sense of pride and achievement about. Check it out.
For those following this, the next chapter analysis is up.
It’s kind of like being psychoanalysed via one of my books; albeit the book that I probably feel most sense of pride and achievement about. Check it out.
Revelations of Neurodivergence (part one)
This is a very deeply personal and quite difficult post to write for an assortment of reasons that I hope will become clear. It’s also something I feel is important and I also hope it may be helpful to others.
Last year in the autumn I was diagnosed as autistic, level one (what was previously referred to as Asperger’s). It took the better part of four years on a waiting list to get to an assessment; the psychologist at the pain clinic had been very helpful in getting me get that far. I’d filled in a 20 page assessment form, sent it off, and then waited. And waited. And waited. Eventually, worrying that it had gone astray, I rang and left a message. Nothing. Apparently they had NO admin staff whatsoever. Eventually a message was left on our answer phone, apologising for the delay, acknowledging both receipt of my form and also the fact that my information in said form strongly suggested a formal assessment was in order. Then they warned that the waiting list was very long. They weren’t wrong.
In the wake of my father’s death, I was contacted again, saying that I’d got close to the top of the waiting list and wanting to organise various things. This is where, for me, the process began to become painful. They asked whether they would be able to speak to someone who’d known me as a child, a parent for example. Bearing in mind I was 54 at this point, I found this first an offensive and pointless request, and secondly, when I explained my father’s recent decease and my mother’s dementia, a painful one. It did not occur to me that this information would not be placed front and centre of whatever records they then held.
Then there was another LONG hiatus. My mother also passed away. Then they made contact again. They wanted to know if there was someone who’d known me as a child who they could also talk to. I explained the recent decease of my one remaining parent, explained also that at 54 there was NO-ONE they could talk to who had known me in childhood and that my husband was the person who’d known me longest (since we were 18) and that he would have to do. I expressed repeatedly my distress and increasing anger that they were continuing to ask for “a parent or someone who’d known me as a child” when I had politely informed them this was NOT possible. There cannot be any condition, illness or anything that ever asks for such a thing. It is infantilising in the extreme. I told them this. I was informed that this was just how it was done. They apologised, but it began to feel very much like a not-’pology.
There were several sessions booked in via video link. Two people, a psychologist and a speech therapist, taking turn and turn about speaking to first me and then to my husband. They were both very pleasant. The process from my point of view was absolutely not. Again I was asked whether there was someone who’d known me as a child, explaining how it was needed for a proper diagnosis. I sensed the hand of a supervisor somewhere in the background insisting on prodding still further. Both my sessions were gruelling, taking several hours each. Endless questions, and most of them were those you would use with a child. I felt insulted and infantilised. I had to comment upon pictures from a children’s book, telling a story and describing the scenes. I’m a story teller, so it wasn’t difficult (but in my assessment letter, apparently I did it in TOO MUCH DETAIL) but frankly I was getting more and more angry at being treated as a child. The assessor was quite stunned at how much I could notice and observe in a single picture, and infer and deduce. That in itself is insulting. I have an IQ of something that is up there with the most intelligent people in the world; I’m a trained observer and a very experienced storyteller.
You’d think all that would be enough, wouldn’t you? But no. Again I get contacted saying that for a firm diagnosis they needed to speak to someone who’d known me as a child. Perhaps my brother, or an aunt or an uncle? At this point I became incandescent. I had thought I had made myself clear: there was no one who’d known me from childhood that it was even vaguely appropriate to speak to. More apologies. Another assessment session.
And a few weeks later, a letter, confirming that I am indeed autistic. I have read the letter twice, then shoved it in a file, because I am still furious. All of the markers that suggest autism were there, quite obviously, without the need for this endless requests for someone who’d known me as a child. There were at least 6 separate occasions when this was asked for, despite on the first time of asking me saying emphatically no. I cannot imagine a more disempowering and infantilising process, one which sought to deprive me of all personal agency over my own designation. I have considered making a formal complaint and still may but I do not have the energy to fight through the process. The assessors I do not blame; they were following the script of a poorly developed process, and I felt the heavy hand of a pernickety supervisor at every step of the way. But to insist that an adult of mature years somehow produces what is in essence a character witness to their childhood years is absurd and cruel. It shows the system is failing adults seeking assessment, because it fails to recognise that they are fucking adults. Sorry. The reason I went through the process was to try and understand myself. There are very limited resources for helping adult autists, and NONE of them address the long term trauma of being autistic in a world that despises and loathes difference. I will not be attempting to access those resources via the autism services locally. I cannot imagine they will be of any real assistance to me. Or, to be honest, any adult who has survived so far into middle age. I can only expect that they may be as infantilising and disempowering as the assessment process.
(part two to follow soon)
The inimitable “We Lack Discipline” are doing a chapter by chapter critique of my novel, “The Bet”. This is for chapter 2. I suspect it’s probably at least as long as the chapter itself.
Be aware that there are references to disturbing/upsetting themes, and some of the language is definitely not suitable for work. But it’s a superb analysis that has cheered me up enormously to know someone loved the book that much they’ve taken the time to work through it in this way.
Dame Julian and self-isolation – some lessons from the 14th century
Despite having her writings, we actually know surprisingly little about Dame Julian,https://en.wikipedia.org/wiki/Julian_of_Norwich the anchorite whose hermitage in Norwich remains a site for pilgrims to this day. We don’t even know her original name; she took the name of the saint whose church she became anchorite of. The church and the cell were bombed during the war but later rebuilt, stone by stone, and the place retains an atmosphere of calm and contemplation; the visitor centre next to it offers refreshments, access to their library and a lovely little gift selection. If you go, they also allow you to park next to the church if you ask for one of their parking permits that will ward off the eagle-eyed traffic wardens.
The 14th century was an especially turbulent one, taking in the Black Death (which reached Britain in 1348, ripping through populations weakened by 2 generations of malnutrition), wars, pogroms, The Peasants’ Revolt, social upheavals and religious movements galore. Dame Julian(born around 1342) saw the effects of the plague first hand, both the initial wave and the later wave that had a reduced effect. When she was around 30, during an illness that was almost fatal, she had a series of visions that are the basis for her writings, and which led to her becoming an anchorite after her recovery. While we know nothing for certain about her origins, education or life before the visions, given that she was 30 at the time, many have speculated that the likelihood was that she was or had been married, and may have had children. The surmise also goes that the illness she survived may have wiped out husband and children. Whatever the truth of this, the life she led after this cataclysmic illness and the visions was entirely different from what she must have led before it.
An anchorite was a hermit who pledged to stay in a single location, often walled in and supplied with the essentials of life via a small window. When a person became an anchorite, the service for the dead was performed, and they were then sealed in. However, they usually led productive lives, often making clothes for the poor and acting (via the window) as a counsellor to troubled souls. One of Julian’s visitors was the mystic Margery Kempe https://en.wikipedia.org/wiki/Margery_Kempe who wrote of her visit to dame Julian. http://juliancentre.org/news/margery-kempe-who-met-julian-is-remembered-in-the-anglican-church-on-9th-november.html
One of the most famous of Julian’s sayings was “All shall be well and all shall be well and all manner of things shall be well.” Sometimes people use this as a means of shutting up others who are worrying about what’s going on around them. Right now, there’s a lot of reasons to worry. Covid-19 is not the Black Death, but it’s a frighteningly infectious and potentially lethal virus, and there’s a lot of misinformation about it. Julian would have witnessed not just the Black Death but many other epidemics or pandemics that roared through the populace; mechanisms by which any disease spread were little understood then and it’s hard to imagine the terrible fear most people would have experienced. For many it may have felt like a judgement from an angry god. Even today, there are so-called Christians who are preaching that this pandemic is God’s judgement on a sinful human race; some who see this as stage in the end of the world prophecies that are supposedly laid out in the Book of Revelation. To that I say: utter tosh.
When the door closed behind Julian and she was sealed inside her cell, I wonder what she would have felt. Her faith, both in a good, kind, loving God rather than the hideous vengeful god usually depicted by the medieval church, would have kept her at peace, and her faith in the benefactors and supporters who ensured that she would be kept supplied with the necessaries of life meant that the usual worries and cares would be gone. She could focus on what she was there for: to pray, to work, to support others from her window, and also to write about her visions.
In my previous post I wrote about how pressured many of us feel by having so many reminders of what others (like Shakespeare) have accomplished in their time in quarantine. There’s a massive collective angst and anxiety that fills the air and reaches all of us who are sensitive to it, and many who otherwise would not be. It’s extremely hard to be creative when the world around us is filled with such turmoil and uncertainty and fear. It’s even harder when well-meaning people exhort us not to waste such an opportunity for extra time we didn’t know we had.
As well as the collective grief and fear and worry, there’s personal concerns that almost everyone is affected by; worries about money, jobs, family, the future. After losing my father six months ago, I had had a sense of relief that at least I didn’t have to worry about him getting the virus. The worry for my mother was short-lived, and replaced instead with immense shock and sadness when she passed away suddenly a few days ago.
I wonder how much of the collective grief that Dame Julian bore and prayed with in that little cell in Norwich, how many folks she comforted with her words of a loving God who cared for his children as a mother might. I would love to sit an hour in her cell now, and pour out my soul there, but I cannot. It may be many months before I can go anywhere that is deemed non-essential. But I can sit quietly in my home, and hold like hazel nuts the cares and sorrows of others, just as she did.
On the Dominance of Filthy Lucre
You’ve undoubtedly heard the phrases, “Money makes the world go round,” and “The love of money is the root of all evil”. In recent months, it’s become apparent to me that both these aphorisms are becoming more and more the reality, and not only does it annoy me, it scares me.
I’m not sure when I first noticed that the suggested products on the mighty ‘Zon were being steadily replaced by sponsored ads, but I really noticed it when my new book got its own page. Most authors have a look at what their books are paired with, and since I’d chosen (possibly naively) to list Méchant Loup: Modern Fables for Sensible Grown-ups https://www.amazon.co.uk/gp/product/1091667012/ref=dbs_a_def_rwt_hsch_vapi_taft_p1_i0
under the genre fairy tales, I saw that beneath the listing were literally dozens and dozens of sponsored ads, supposedly for products related to my book. When it first came out, the sponsored ads beneath my book seemed to be retold fairy tales by only a couple of authors; books that had either just been released or were on pre-order. I glanced at them out of curiosity but none appealed to me. Méchant Loup isn’t a collection of retold fairy tales or even reimagined ones (with one exception of the title story), and given it’s intended for “sensible grown ups”, some of the sponsored ads were way off mark. Most of them if truth be told. I’d hoped that I might gain some traction in this category but I’d have been better listing in literary fiction. Or perhaps not.
The trouble is not just as an author. As a reader, I do glance at the suggested books under the listings of books I have enjoyed. But now it seems that the complex mathematical equations needed to predict what someone might like have gone terribly awry, directly as a result of the proliferation of paid ads. I suspect that few authors don’t now use paid advertising; from what I have heard through the jungle drums, it’s with diminishing returns. Some authors do not recoup from sales what they spent on advertising. I’ve yet to do a poll, but my gut feeling is that the general trend is spending more and more on advertising and get less and less back.
Being a writer is becoming ever more a mug’s game. The ones (like me) who are creating the content (what a hideous phrase) are not the ones garnering any real monetary rewards for the work. Worse still, it’s becoming horrifyingly common to discover that author mills are churning out books, often scraped illegally from the works of others, altered enough to pass the checks needed to be published, and published en masse, with paid reviews convincing enough to lure in more buyers.
Can you hear me sighing heavily?
It might have been the collective sighs of all of us demoralised writers that created Storm Ciara.
Everyone who can grab a piece of us is doing so. Every day I read of other writers who are being forced to give up doing what they love because they can no longer afford to do it. Don’t get me started on the continuing phenomenon of pirating books. One friend has done something I admire immensely, and has backed away from commercial publishing, and is producing limited edition, hand-bound books, available from her directly.
It satisfies the soul, and evades the risk of having your work scraped, pirated or plagiarised. I lack the skills to do so, but hats off to her.
The new book has been out a month and has now 7 fabulous reviews, but the initial burst of sales is dwindling, and I fear that before too long it will, along with all my other books that I cannot pay to advertise and will not even had I the money (because it’s clear authors are the cash cow of various industries), languish with only occasional readers.
I don’t have any answers. I try to pass on news about the books of others when I can, and appreciate those who have done that for me. We live in a world where filthy lucre is the only thing that seems to matter to the vast majority of the population; it makes me more and more want to retreat from it all, and not participate in this orgy of capitalistic nihilism.
Fragments and Inertia (musings and mutterings)
In the ten or so years since I began blogging I’ve seen a lot written about SEO (search engine optimisation), detailing how to gain greater prominence among the various search engines. I’ve concluded that for the most part, what gives greater prominence is paying for it, whether by using a paying platform, or by plug-ins that you also pay for, or by choosing a blogging platform closely allied to the companies that run search engines. So for years I tried to use titles that might spark interest or somehow be picked up by the search engines (I’m not naming any…). But these days, finding a title for a blog post mostly involves finding something, anything, by which I might find it again amid the thousand or so articles filed away. Hence the fairly uninspiring title of THIS post.
I wanted to write a post that gives some sense of what I’ve been doing and what I have managed to do and what I have not managed to do. Oh, and why.
Good news is that I am quite close to publishing a new book.
An Epiphany, of sorts
Today marks Epiphany, the festival that for most marks the end of all things Christmas. It commemorates the arrival of the Magi, coming to pay their respects to the infant Jesus, though much of what people think they know about the Magi is a much later medieval addition. The bible does not give names to the visitors, nor does it state that there were three. That aside, it’s a charming addition; it personalises these shadowy visitors and gives them flesh and human attributes, as well as the gifts they brought, which were largely symbolic ones. I am sure that the holy family valued the gold; it probably got them through lean and difficult times. Frankincense was at one time worth the same ounce for ounce as gold and myrrh not far behind. I burn both during the Christmas period and I usually burn some beautiful incense called Three Kings after I take down the Christmas decorations (though the crib scenes remain until Candlemas).
But that’s not the epiphany I am talking about. The word has come to mean a sudden, dramatic and powerful revelation. During a recent episode of extra-nasty depression (that general base line for me is just fairly nasty and the extra-specially nasty was paralysing and unbelievably destructive) I had an insight I have had to sit with to see if it may be true, and that insight is the epiphany I’d like to explain. Continue reading
It’s Ground Hog Day – no, sorry, it’s #WorldMentalHealthDay
(Warning: serious gloom ahead. Just letting you know.)
Just like Christmas, World Mental Health Day takes me by surprise each year and leaves me just as disappointed (I’m not a big fan of Christmas either) as previous years. More celebrities opening up about their struggles, more empty rhetoric, more pleas for ending stigma. And what changes? I can see few changes since last year. In my own country, provision for serious mental illness has declined still further; what is offered to people coming in with mental and emotional distress is extremely limited and chances are, you’ll be on a long waiting list just to be assessed. I’ve heard whispers that the government is appointing a minister for suicide prevention.
The vital importance of beauty, truth and hope in books
As a card-carrying depressive, I’m not someone known for being an optimist. I’m sometimes like the love child of Marvin the Paranoid Android and Eeyore. It’s hard to not feel that the world is currently going to hell in a very large hand basket. I take breaks from the internet on a regular basis, hoping that the world beyond my small bubble will have improved by the time I go back; I retreat into the world of books and seek what solace I can find there.
I’ve recently finished reading a biography of Elizabeth Goudge. Beyond the Snow by Christine Rawlins is an exhaustive, and inspiring account of the life and faith of this most beloved of authors, and I didn’t want it to end. She had an interesting and sometimes very difficult life, though cushioned somewhat by her privileges of birth. Though she does not write much about it, it is known that she experienced severe mental distress and even breakdowns; this is reflected very much in certain books (such as The Scent of Water that I have blogged about here) and echoes in many others. There is compassion and bravery in her decision to write happy books.
Critics sometimes dismissed her books as “pretty pretty” and as light romances (they’re not) but the public bought them in their millions. She does not shy away from the difficult things, like death or loss of faith or suffering, but she offers a vision of hope, of redemption and of atonement too. The books are full of havens: places where people go to be healed, to rest and recover their strength and to go out again to continue their work in the world. There is faith, but it is built into the woodwork and rarely centre stage. There is kindness and care and hope, even in dark times. People make tough decisions, ones that reflect a code of ethics that is now rare.
In these dark times, I know that I am avoiding fiction that seems to revel in darkness and hatred. I’m trying to find books that are trying to be beacons in the dark, to be rallying calls to resist the lure of what Hopkins calls Carrion Comfort. I’ve read a few recently. I reread Sir Terry Pratchett’s Night Watch, my favourite of his Discworld novels; though it looks evil squarely in the face, it fights back. I have recently read a couple of novels by Jane Davis too. My Counterfeit Self https://www.amazon.co.uk/My-Counterfeit-Self-Jane-Davis-ebook/dp/B01KTY22R0/ is an excellent and immersive tale of a woman who stayed true to her own beliefs and who fought for justice and social changes. The fact that the main character is a poet just adds to the charm for me. Smash All The Windows https://www.amazon.co.uk/Smash-all-Windows-Jane-Davis-ebook/dp/B079MBP3WD/ is a powerful (and sometimes very disturbing) account of a major disaster on the London Underground; the survivors and the families of those lost face huge difficulties in getting at the truth of what happened, and even greater challenges of transforming the grief into something that shines beyond all the pain and sorrow and loss.
In non-fiction, I recently read another book by Robert McFarlane, The Old Ways. It’s about walking and about the power of paths. I’d highly recommend it if you are someone who loved walking but whose health does not allow longer distances or more difficult conditions. There is great beauty and evocation of all the senses in McFarlane’s writing, taking you out of yourself and into another world of experience.
All of these books offer beauty and hope and truth without ever scuttling into whimsy and unrealistic withdrawal from the world. They’re books that strengthen your soul; they put shining steel into your limbs and the gold of optimism into your soul.
As for my own writing… Well, I’ve been limping along with several projects and having read Beyond the Snow, I have become convinced that to keep going as a writer, I must commit myself to writing books that are filled with beauty, truth and hope, however unfashionable, however bourgeois and some might say, naff, such a concept might be. My existing novels, all available from Amazon, are already books that I believe offer a haven and a support to battered souls. Despite the fact that it feels like the world has become so focused on capitalism that unless you pay for advertising, I do believe that people will find my books even if Amazon is steadily erasing all the opportunities that once existed for unknown independent authors to become known. I’m not sure how, though. I have less than three thousand followers on my Twitter, less than five hundred likes on my official Facebook page and around five hundred subscribers to this blog.
But that, perhaps, is not my business. My business is to find that beauty, hope and truth and let the stories weave themselves. That’s all I can do right now.
Be More Snail – snail medicine for self-preservation
No, you will be relieved to know I am not touting the skin cream that uses snail slime as its main ingredient. Continue reading